Freedom of Information Request: 0587 2019/20  

Q1 How many patients with Haemophilia A are registered with your centre?

239

Q2 Of these how many are mild, moderate or severe? If unknown, please state unknown.

Severe 95                  Moderate 38                Mild or unknown 106

Q3 How many patients with Haemophilia B are registered with your centre?

48

Q4 Of these how many are mild, moderate or severe? If unknown, please state unknown. 

Severe 15                    Moderate 9                  Mild or unknown 24

Q5 How many patients with Von Willebrand disease are registered with your centre?

361

Q6 In the last 3 months, how many patients have been treated with the following:

Advate            31

Afstyla            0

Elocta             8

Emicizumab (Hemlibra)       8

Helixate          0

Kogenate       0

NovoEight      14

Nuwiq             1

Refacto AF     32

Factor Eight Inhibitor Bypass Activity (FEIBA)    9

NovoSeven RT          7

Alphanate      0

DDAVP (desmopressin)       7

Haemate P     0

Trabexamic acid       Not recorded

Veyvondi        0

Voncento       14

Willate            2

Willfact           0

Willfactin        0

Alprolix          10

BeneFIX         6

Idelvion          2

Refixia            0

Rixubis           0