Coronavirus information

Visitor restrictions, information for patients and more.

View coronavirus information

FOI 0402 2019/20 Fabry and Gauchers Disease

Freedom of Information Request: 0402 2019/20

 Q1. How many NEW patients have been diagnosed for Fabry Disease in the past 3 months [latest 3 months available]?

7 patients

Q2. How many NEW patients have been diagnosed for Gaucher’s Disease in the past 3 months [latest 3 months available]?

1 patient

Q3. How many NEW patients have been diagnosed for MPS II (Hunter Syndrome) in the past 3 months [latest 3 months available]?

None

Q4. Please state the number of patients treated  in the past 3 months [latest 3 months available] on each of the following treatments, regardless of diagnosis;

Replagal (agalsidase alpha) – 20

Fabrazyme (agalsidase beta) – 13

Galafold (migalastat) – 28    

VPRIV (velaglucerase alfa) – 2         

Cerezyme (imiglucerase)  – 3          

Cerdelga (eliglustat) – 5    

Zavesca (miglustat) – 1    

 

Thinking of going to Accident and Emergency but not sure if you need to? Try our handy symptom checker.

Try ask A&E

We're improving the accessibility of our websites. If you can't access any content or if you would like to request information in another format, please view our accessibility statement.