Freedom of Information Request: 0454 2019/20
For the period 1st January 2018 to 31st December 2018 (or the most recent 12 month period available), the number of patients diagnosed with genetic haemochromatosis under your care.
Please note that this relates to inpatients admitted with genetic haemochromatosis, and we cannot confirm that these patients were all treated for genetic haemochromatosis
QE – 126 patients discharged from the QE in the 2018 calendar year who had a diagnosis of Haemochromatosis coded against their inpatient spell. This covers all types of Haemochromatosis and includes hereditary
HGS – There have been 306 patients that have had an inpatient stay in the trust who have a diagnosis of genetic hemochromatosis. This covers the period 01/01/2018 – 31/12/2018 based on discharge date.
For the period 1st January 2018 to 31st December 2018 (or the most recent 12 month period available), the average time in days from first referral from primary care to the patient’s first appointment within your trust.
We do not hold this information for patients with genetic haemochromatosis in an accessible format
A copy of the protocol and/or patient pathway applicable to the care of people with genetic haemochromatosis.
Please see attached document – Clinical Guideline CG098
The date that your protocol/patient pathway for genetic haemochromatosis was last reviewed or revised.
Last reviewed and approved in January 2018
A copy of your clinical protocol(s) for therapeutic venesection.
Please see attached documents – 271, 272 and 895
The date that your protocol(s) for therapeutic venesection were last reviewed or revised.
271 – last reviewed in May 2016, 272 – last reviewed in May 2017, and 895 last reviewed in May 2017
CD 271 4 EPP for the performance of venesection at the RN led clinic for…
