University Hospitals Birmingham NHS Foundation Trust (UHB) completed a merger by acquisition of Heart of England NHS Foundation Trust (HEFT) on 1^st April 2018.  Due to historical differences in data collection/reporting across UHB and the former Heart of England NHS Foundation Trust this response has been provided by hospital site.

Queen Elizabeth Hospital

1. How many prostate cancer patients (new and existing) were registered within your Trust/hospitals between 1st April 2017 – 31st March 2018? 275
2. Of those how many were offered specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)? We do not hold this information. However, we can tell you that a holistic needs assessment telephone clinic was set up in December 2017 for all newly diagnosed patients with urological cancers. All new prostate cancer patients from that point onwards will have been offered appropriate discussions around psychological support.
3. Of those how many were referred to specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)? Since setting up the holistic needs assessment telephone consultation clinic we have referred 11 kidneys and 4 prostate cancers for psychological support.
4. Do you offer psychological support services for families and or carers? (Yes or No) No
5. If yes, how is this service offered? (e.g. everyone is proactively offered a referral as standard of care, or do families/carers request access to psychological support reactively) Not applicable
6. What proportion of families/carers were referred to psychological support services in the last 12 months (1st April 2017- 31st March 2018)? None
7. Do men have access to other psychological support services beyond active treatment (i.e. those that are under active surveillance and living beyond cancer)? (Yes or No) Active surveillance men have risk stratified follow up clinic appointments. Those men living beyond cancer (i.e. discharged) are discharged to primary care for ongoing cancer management/monitoring.
8. Who provides other psychological support service for your prostate cancer patients? choose from below:
9. NHS commissioned mental health service (funded by CCG/NHS England or Trust) No
10. National charitable organisation (e.g. Macmillan, Prostate Cancer UK)- We use PCUK patient information which includes the helpline telephone number
11. Local support group (volunteer-led) Support group details are available in the Patrick information room
12. Hospice Some patients are referred to a hospice for psychological support for both patients and carers.

Heartlands, Good Hope and Solihull Hospital

1. How many prostate cancer patients (new and existing) were registered within your Trust/hospitals between 1st April 2017 – 31st March 2018? 519.
2. Of those how many were offered specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)? All patients are seen by Level 2 Psychology trained clinical nurse specialists (CNS’s) at diagnosis and often psychological issues are dealt with at that stage via Holistic Needs Assessments.
3. Of those how many were referred to specialist psychological support services in the last 12 months (1st April 2017- 31st March 2018)? 8.
4. Do you offer psychological support services for families and or carers? Yes
5. If yes, how is this service offered? (e.g. everyone is proactively offered a referral as standard of care, or do families/carers request access to psychological support reactively) Service is offered where deemed appropriate at Urology CNS review clinic whilst carrying out Holistic Needs Assessments. Referral can also be made at patient / carer request.
6. What proportion of families/carers were referred to psychological support services in the last 12 months (1st April 2017- 31st March 2018)? 1 family were referred to Macmillan Relate service in the last 1 year.
7. Do men have access to other psychological support services beyond active treatment (i.e. those that are under active surveillance and living beyond cancer)? Yes
8. Who provides other psychological support service for your prostate cancer patients? choose from below:
9. NHS commissioned mental health service (funded by CCG/NHS England or Trust) We commission our service from Birmingham and Solihull Mental Health Foundation Trust
10. National charitable organisation (e.g. Macmillan, Prostate Cancer UK) All patients are given details of Macmillan and Prostate UK services at diagnosis. Patients / carers are referred to Macmillan Relate service as appropriate.
11. Local support group (volunteer-led) All Urology CNS’s have access to a Living With and Beyond Cancer comprehensive list of agencies and local facilities (see attached). This list is shared with patients at diagnosis when deemed appropriate or on request.
12. Hospice Our local hospices facilitate Living with and Beyond Cancer courses, patients are signposted to these.
13. Other (please specify)