Seizure freedom project – Freedom of Information request questions
Q1 Please provide the name of your Trust
Heart of England NHS Foundation Trust
Q2 What type of adult epilepsy service do you provide?
Hospital outpatient clinic
Q3 Where do you provide your adult epilepsy clinics? Please list the clinic location postcodes:
On the three sites:
Birmingham Heartlands Hospital (BHH) B9 5SS, Good Hope Hospital (GHH) B75 7RR, and Solihull Hospital (SH) B91 2LJ
Does the adult epilepsy service provide access to:
Q4 Epilepsy diagnosis
Yes
Q5 On 31 March 2017, what was the average waiting time, in weeks, for a first epilepsy appointment?
7 weeks
Q6 A first seizure clinic
Yes
Q7 On 31 March 2017, what was the average waiting time, in weeks, for a first seizure clinic appointment?
4-5 weeks
Does the adult epilepsy service provide access to:
Q8 Medical treatment
Yes
Q9 Surgery
No
Q10 VNS
No
Q11 Transition clinic
Yes
Does the adult epilepsy service provide access to:
Q12 EEG
Yes
Q13 On 31 March 2017, what was the average waiting time, in weeks, for an EEG?
5-6 weeks
Q14 MRI
Yes
Q15 On 31 March 2017, what was the average waiting time, in weeks, for an MRI?
5-6 weeks
Does the adult epilepsy service provide access to:
Q16 Neuropsychology
No
Q17 On 31 March 2017, what was the average waiting time, in weeks, to start neuropsychology treatment?
Not applicable
Q18 Neuropsychiatry
No
Q19 On 31 March 2017, what was the average waiting time, in weeks, to start neuropsychiatry treatment?
Not applicable
Q20 Neurophysiology
Yes
Q21 Geriatrician
No
Q22 What type of paediatric epilepsy service do you provide?
Hospital
Outpatient clinic
Planned hospital
Inpatient
Q23 Where do you provide your paediatric epilepsy clinics? Please list the clinic location postcodes:
Birmingham Heartlands Hospital (BHH) B9 5SS, Good Hope Hospital (GHH) B75 7RR,
Does the paediatric epilepsy service provide access to:
Q24 Epilepsy diagnosis
Yes
Q25 On 31 March 2017, what was the average waiting time, in weeks, for a first epilepsy appointment?
5-6 weeks
Q26 First seizure clinic
At the BHH site: There is no first seizure clinic. They are seen in the general clinic and then referred to follow-up epilepsy clinic after establishing diagnosis and starting on treatment.
At the GHH site- there is a new epilepsy clinic.
Q27 On 31 March 2017, what was the average waiting time, in weeks, in weeks for a first seizure clinic appointment?
5-6 weeks
Does the paediatric epilepsy service provide access to:
Q28 Medical treatment
Yes
Q29 Surgery
No
Q30 VNS
No
Q31 Transition clinic
Yes
Does the paediatric epilepsy service provide access to:
Q32 EEG
Yes
Q33 On 31 March 2017, what was the average waiting time, in weeks, for an EEG?
5-6 weeks
Q34 MRI
Yes, but not for children less than 2 years needing general anesthesia
Q35 On 31 March 2017, what was the average waiting time, in weeks, for an MRI?
5-6 weeks
Does the paediatric epilepsy service provide access to:
Q36 Neuropsychology
No
Q37 On 31 March 2017, what was the average waiting time, in weeks, to start neuropsychology treatment?
Not applicable
Q38 Neuropsychiatry
No
Q39 On 31 March 2017, what was the average waiting time, in weeks, to start neuropsychiatry treatment?
Not applicable
Q40 Neurophysiology
Yes
On 31 March 2017, how many neurologists with epilepsy as a specialism* did you have in your Trust?
Q41 Number of people
1
Q42 Total number of epilepsy sessions per week
0.8
Q43 Full time equivalent
0.8 PA
*An epilepsy specialist is defined as a consultant with expertise in epilepsy as demonstrated by training and continuing education in epilepsy, peer review of practice and regular audit of diagnosis. Epilepsy must be a significant part of their clinical workload (equivalent to at least one session a week)
On 31 March 2017, how many paediatricians with epilepsy as a specialism* did you have in your Trust?
Q44 Number of people
02
Q45 Number of epilepsy sessions per week
02
Q46 Full time equivalent
2
*An epilepsy specialist is defined as a consultant with expertise in epilepsy as demonstrated by training and continuing education in epilepsy, peer review of practice and regular audit of diagnosis. Epilepsy must be a significant part of their clinical workload (equivalent to at least one session a week)
On 31 March 2017, how many adult neurologists (including sub specialists) did you have in your Trust?
Q47 Number of people
1
Q48 Number of epilepsy sessions per week
0.8
Q49 Full time equivalent
0.8 PA
On 31 March 2017, how many adult epilepsy specialist nurses did you have in your Trust?
Q50 Number of people
0
Q51 Full time equivalent
0
On 31 March 2017, how many paediatric neurologists (including sub specialists) did you have in your Trust?
Q52 Number of people
0
Q53 Number of epilepsy sessions per week
0
Q54 Full time equivalent
0
On 31 March 2017, how many paediatric epilepsy specialist nurses did you have in your Trust?
Q55 Number of people
2
Q56 Full time equivalent
0.7
On 31 March 2017, how many learning disability epilepsy specialist nurses did you have in your Trust?
Q57 Number of people
None
Q58 Full time equivalent
Not applicable
On 31 March 2017, how many unfilled or vacant posts did you have?
Q59 Neurologists with epilepsy as a specialism*
0
Q60 Paediatricians with epilepsy as a specialism*
0
Q61 Neurologists
0
Q62 Epilepsy specialist nurses 1
(Currently recruiting)
*An epilepsy specialist is defined as a consultant with expertise in epilepsy as demonstrated by training and continuing education in epilepsy, peer review of practice and regular audit of diagnosis. Epilepsy must be a significant part of their clinical workload (equivalent to at least one session a week)
We want epilepsy patients to have easy access to an epilepsy specialist and to be able to contact their local ESN directly.
Q63 Could you please provide the best number to contact your adult epilepsy specialist nurse or epilepsy service? (If there is one)
None
Q64 Can patients use these details to contact the service?
Not applicable
Yes No
Q65 Could you please provide the best number to contact your paediatric epilepsy specialist nurse or epilepsy service? (if there is one)
07968403234
Q66 Can patients use these details to contact the service?
Yes (predominantly for BHH and SHH)
Q67 Do you routinely offer annual reviews for your epilepsy patients?
Yes
Q68 Do you routinely offer care plans to your epilepsy patients?
Yes
Q69 What does the care plan look like?
Letter to GP, copied to patient
Discussion of goals with patient
Please can you provide examples of the above?
We do not have generic examples, each letter would be individual to the patient
Please send to:
Freepost RTGS-LEYK-XGCK, Epilepsy Action, New Anstey House, Gate Way Drive, Leeds, LS19 7XY or email poconnor@epilepsy.org.uk
Q70 Can your patients access structured self-management education programmes?
No
What is the name of the face-to-face programme?
Not applicable
What is the name of the online programme?
Not applicable
Other – please specify:
Q71 What percentage of patients achieve seizure freedom 12 months after referral to your service?
50-60%
Q72 What percentage of patients achieved seizure freedom during 2013/2014?
As above
Q73 What percentage of patients achieved seizure freedom during 2014/2015?
As above
We may wish to contact you about your responses to this survey. Please tell us how we can do this.
Q74 Your name
Mostafa Awad
Q75 Your telephone number
01214243475
Q76 Your email address
mostafa.awadh@heartofengland.nhs.uk
